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I am a biology teacher by day but a crazy triathlete and runner at all other times.

Wednesday, June 27, 2012

1/2 way done with chemo and 13% done with herceptin

I decided to write on my type of cancer to clarify some things. I was diagnosed with stage 1 grade 3 ductal carcinoma. The method of treatment is surgery including lymphnode dissection. This alone does not mean I would have needed chemotherapy and herceptin. My cancer was Estrogen (ER) receptor and progesterone (PR) receptor positive (I scored a 100% here which is great!). This means that my cancer cells bind to estrogren and progesterone and will divide more quickly based on the presence of these hormones in my body. My cancer was also HER2+ (this is also a receptor on my cells) having an overabundance of these receptors allows it to be a very aggressively dividing cancer. On a positive side, there are two targeted treatments for these receptors. One is Herceptin - Herceptin targets HER2+ receptor and destroys these cancer cells. Herceptin is given in weekly doses over the course of 1 year through my blood stream. One is Tamoxifen - Tamoxifen targets ER and PR positive cells and slows or does not allow them to divide. I do not start Tamoxifen until after I am done with chemotherapy. Speaking of chemotherapy, I became eligible/in need of chemotherapy when my cancer came back as grade 3 (more aggressive) and HER2 positive. The combination of the chemotherapy drugs (Taxotere and Carboplatin) and Herceptin and the follow up treatment of Tamoxifen give me the best chance of making a full recovery from cancer and increase my probability for remission for many years to come. The chemo drugs Taxotere and Carboplatin are given to me every 21 days for 6 rounds. These are the drugs that give me the worst side effects or the commonly known chemotherapy side effects. On a positive side, because I had no lymphatic involvement, I do not need radiation treatment when I am done with chemo! After tomorrow, I am 1/2 way done with my chemotherapy treatments! If you read the last post and are an Ironman, a friend or family member of an Ironman, or a person who loves Ironman (doesn't everyone) in my analogy I would be done with the 2.4 mile swim and 56 miles of the bike! If we are talking about the Lake Placid Ironman, this means I only have to get out of Lake Placid on the hills, take a beautifully fast ride down the Keene hills, take a leisurely ride into Ausable Forks, and then climb back into Placid over the shoulder of Whiteface and through the notch. I will know I am close to the finish when I head up the bears toward the transition area! Surprisingly this is very similar to my cancer treatment effects. I've done it countless times before so I can do it again now in a different arena. We administered the drugs differently this time around though to pinpoint my allergic reaction that I have been having. We decided not to give another anti-nausea medication because we are pretty sure it is that which is giving me hives. We decided to give me my other anti-nausea med (Emend), Herceptin, and Taxotere today only as we know Herceptin doesn't bother me so if I get hives tonight it is either Emend or Taxotere. Tomorrow we give me carboplatin and then we head back to camp and hope I do not have hives again. We have also upped my steroid and benadryl to prevent any allergic reaction. Fingers crossed this will work. This means I get two needle sticks in one week which I am not excited about but what are you going to do. Without the extra anti-nausea med we are trying a non-drug method of anti-nausea prevention using a little device I wear around my wrist which gives off little electrical pulses and pushes on a pressure point which is supposed to follow the acupressure principles. Since acupuncture seems to be working it was worth a try for this. I have also completed 13.5% (7 out of 52)of my Herceptin treatments! Those are hour long appointments and a breeze so no worries with them right now! In other news: 1. I received my genetic test back and am BRCA2 positive - this is the same gene my mother has but I know it is not solely the reason I got cancer when I did. We can discuss this at a later time after I have another meeting with the genetics counselor in September. 2. I was told on Friday by my surgeon that my incision looks completely healed! Yippie! He also said that I could "Return to all normal physical activities." Which prompted Shauna to ask "Normal activities for who..you? Or Regular people?" That wasn't clarified in the appointment so I say ME! My next appointment was with my oncologist who said "Just find your limits and don't do too much. You will know and I will know when you have over done it." 3. Thusly I went out in Lake Placid and rode up Mirror Lake Drive, down the bears on 86 to River Road, out and back on River Road and back up the 5 hills to town! It was 15.42 miles in 1 hr 15 min! I figure I will use this experience when I'm on mile 106 of my bike during Ironman 2014 and say to myself, "In life there are hills.." wait that is Melinda's song. I meant, "I did this when I was going through chemo, I can do this easily now! Suck it up and go." Of course there would be expletives in there but I don't know who is reading this! I also did this course so I could feel like an Ironman again, on the Ironman course, with other Ironmen who were passing me extremely easily. But that is ok, I was on the Ironman course again! 4. Running is really difficult but I am doing it! My disappointment lies with the fact that I am putting in the runs but I am not getting faster and they are not getting easier but then I think, "I am going through chemo and RUNNING! That's amazing!" I can't wait till I can go back to running faster than 12 min miles and more than 30 minutes without feeling like I must stop. 5. Do to unforeseen circumstances, I am making the trek home weekly for treatment as my planned destination in the Adirondacks did not work out. This is a long story and not meant for a blog so we can discuss later if you want to. This makes me feel like I am ruining our summer but I keep reminding myself it's only one year and we will be back to "normal" next June! 6. I am going back to work in September in a part time position. There were many factors involved in this decision but ultimately it will be the best move for me. It will be very different but in the long run I know this will give me some structure I need and allow my brain to work in a different way which will be important to my recovery. 7. My diet is crazy right now! I am craving fatty, salty, cheesy foods which are not the things I ever craved before. I have gained about 6 lbs. This is all due to the steroids they are giving me to keep my body from having a reaction to the chemo meds. They make me ravenous and crave crazy things. I have to force myself to eat well on days and other days I just let myself indulge in these cravings. Between the hunger, the much less activity than I am used to, and the quality of food I am eating it is not surprising I am gaining weight but it is making me angry. I keep being told to give myself a break and I will lose it quickly after but I hate working to lose weight. My nutritionist was excited I gained weight though because it means I am giving myself a cushion to roll back on later in chemo treatments just in case. And when I say a cushion, I mean a spare tire around my midsection! On a positive side, I am getting some muscles back slowly! Joe told me last week when I was craving a cheeseburger to just eat it since I already have digestive issues I wouldn't notice a difference. So I ate a couple in the past two weeks. I haven't eaten red meat since last August! We think I am craving the Iron and B vitamins since my Red Blood Cell count is down. I would love to want to eat spinach or other veggies instead but spinach tastes bad to me right now so I won't eat much of it if it is an option. I think I may go back to my vegetarian ways after I am done with chemo just to detoxify my system! But for now, I am giving in to what my body craves to a point. I do call the line at eating at 2:30 am when I am starving! I think that is all for today. Yes, I am up at 1:25 am but it is because my steroids keep me wide awake at night.

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